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Baby Khai is a 5-month-old baby girl, who has been diagnosed with a terminal genetic disorder called GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. Affecting one in every 100,000 to 200,000 live births within the general population. Most patients with type 1 GM1 experience seizures, strabismus, corneal clouding, or vision loss. Infantile GM1 is terminal, resulting in death by two to four years of age. 
Your donation will help support baby Khai in treatment and therapies to give her normalcy to her little life. 

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Acknowledgement of Country
We would like to acknowledge the traditional custodians of the land on which we gather today, the Yugembah Speaking Nation and pay our respects to their Elders past, present, and emerging. We recognise their continuing connection to the land, waters, and culture, and acknowledge the significant role they play in the life of this region.

As we meet on this land, we acknowledge the importance of listening to and learning from Indigenous perspectives, histories, and wisdom. We commit to honoring the ongoing journey towards reconciliation, and to fostering a respectful and inclusive community for all.

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